This article is a discussion between two former colleagues and longstanding friends about the lived experience of illness and disability . In January 2013, Kirsten Harley, a promising early career sociologist was diagnosed with motor neurone disease (MND), a degenerative neurological condition with a typical life expectancy of 2-3 years . In this article, which is part interview and part shared reflection, we consider how Kirsten's knowledge of sociology has shaped her responses to the illness . We 'discuss' the process of meaning making, health system navigation, interactions with health professionals, advocacy, becoming a 'passive activist', the role of technology and what we, as sociologists, might learn from a life so dramatically changed.
Index: Bourdieu, Motor neurone disease, communication, health care system, illness narratives, time