BACKGROUND: This survey of centers caring for patients receiving home parenteral nutrition (HPN) was conducted to assess the impact of the coronavirus disease 2019 (COVID-19) crisis on the management of these patients regarding provision of care, monitoring, regular follow-up, and any changes to service infrastructure

METHODS: A survey was devised and publically published on the Research Electronic Data Capture database management system, with individual centers responding to a public link

RESULTS: A total of 78 adult and pediatric centers worldwide contributed to the survey, representing & gt; =3500 patients' experiences Centers reported infrastructure maintenance for Parenteral Nutrition (PN) bag deliveries to patients (60 , 76 92 %) or delivery of ancillary items (57 , 73 08 %), home delivery and HPN administration (65 , 83 33 %), and home care nurse shortages (25 , 32 05 %) Routine follow-up of HPN patients changed to either all telemed or mixed with emergency clinic review (70 , 89 74 %) In 26 centers (33 33 %), HPN for newly discharged patients with benign conditions was reduced or stopped Based on clinical history, the centers reported psychological distress for patients (52 , 66 67 %), with anxiety, worry, concern, and apprehension reported most frequently (37 of 52 , 71 15 %) but also fear (10 of 52 , 19 23 %), depression (5 of 52 , 9 62 %), and issues related to isolation/confinement (12 of 52 , 23 08 %)

CONCLUSIONS: The COVID-19 pandemic was reported by clinicians to have had a far-reaching adverse impact on patients receiving HPN, especially their safety in terms of provision of personal protective equipment, PN bags, available nursing staff, and psychological well-being Healthcare systems responded to the challenge and presented new ways of working